What Is Palliative Care?

Goals of palliative care

• Easing symptoms that cause distress. The main goal of palliative care is to ease symptoms. Symptoms may affect a person’s ability to eat, be active, or spend time with others. Medicines and other methods are used. This gives the person a better quality of life while the illness is being treated.

• Coordinating care. This helps to make sure that each doctor is aware of the goals of care. Communication is done on a regular basis among all team members to make sure that the care goals are met.

• Meeting emotional and spiritual needs. The care team helps both the person being treated and family members cope with stress, depression, anxiety, and other issues. They can set up meetings with a counselor or spiritual advisor as desired.

• Giving information and helping with decisions. Care providers can help people and their families get the information they need. They can also help when care decisions need to be made.

• Helping create an advance care plan. This is a series of legal documents that note a person’s wishes for their future healthcare. It helps to make sure that if people can’t speak for themselves, their wishes can still be carried out. The documents vary by state.

Working with your palliative care team

Palliative care is given by a team of people. They focus on the physical, emotional, and psychosocial aspects of advanced illness. The team may include a palliative care doctor or nurse, social worker, pharmacist, dietitian, occupational therapist, counselor, spiritual advisor, and others. To get the most out of palliative care, both the person and their loved ones have a role. For example, an occupational therapist can suggest ways that a caregiver could resume their previous occupations and still support their sick family member.

What a person who is receiving medical treatment can do

Tell your doctor you're thinking about palliative care. Ask what palliative services are available in your area.

To make sure you get the best care, learn what you can about your illness and the goals of your care. If you're having pain and other symptoms due to a serious illness, ask your doctor for a palliative care referral.

Treating these symptoms is best for your health and quality of life. If you need support in other ways, speak up. The care team is there to help you get what you need.

What a family member can do

Talk with the palliative care team often. Do your best to understand your loved one’s illness and goals of care. When decisions need to be made, act on your loved one’s wishes. And if you have a concern or question, speak up. You can help the team make sure that your loved one has the best quality of life possible.